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| ShellyM |
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| Joined: 19 Aug 2004 |
| Posts: 1712 |
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 Posted: Wed Mar 07, 2012 1:14 pm |
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Hi Sophia,
I wonder if I could pick your brain, your name was mentioned to me after my 4th natural miscarriage.
A brief history of me - ttc for 10 years - 6 failed IVF, 2 natural miracle mc at 5 weeks. I was diagnosed by George as having immune issues including raised NK activity and a shared DQ alpha antigen with DH but again the tx failed so I was advised to go to de but had a biopsy done of my uterus before tx with Siobhan Quenby and the nk cells came back normal. Fantastic news and i got first time lucky and my daughter Sophia was born in July 2009 (took baby asprin until 30 weeks and also hrt and progesterone for the first 3 months as this was ivf.
Since then we haven't taken any contraception - didn't really see the point and then shock of shocks we had a natural miracle in June2010 - took progesterone and baby asprin, on/off bleeding from 8week to 13 weeks, major bleed at 15weeks scan showed babies heart had stopped. I gave birth to baby Noah in September 2010.
More recently I had natural miracle number 4 in Dec2011, but I started bleeding 6 weeks and 7 week scan showed no heartbeat, no asprin taken (was advised against)but took progesterone.
I have had a meeting with the consultant in the feto maternal unit of the hospital, he is happy to prescribe me progesterone, clexanne and asprin but will not prescribe me steroids. He has written to Siobhan Quenby (which we are waiting a reply but I don't hold up much hope and with my age coming up to 40 in July I haven't got the time on my side for lots of testing. CARE do not want anything to do with me (last with them in 2006)and I don't know where else to turn to get these steroid drugs prescribed.
Am I right in thinking that you got prescribed steroids for your natural pregnancy - if so how did you get a dr to prescribe them?
Sorry if i've been a bit rambling on this post.
Shelly xxx |
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6 x BFN
08 DE Spain - BFP!
Jun10 Nat miracle, Noah born asleep at 15 wks
Dec11 Nat Mir mc 6wks
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Posted: Thu Mar 08, 2012 7:47 am |
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Hi Shelly
The lovely Maryrose texted me to let me know that you posted…I don’t get to log on much at the moment, so it might have taken me a while to spot your message..thank you Maryrose xx
I am so sorry to hear about your miscarriages. It really is heart-breaking and doesn't get any easier when it happens again and again. I do understand how you might be feeling. Big hugs xxx
Like you I had a number of miscarriages ( IVF and natural miracles) but no immune issues were diagnosed at the time. I also had a successful IVF pregnancy in 2006 resulting in our lovely boy Yannis. On this cycle I only took aspirin and progesterone…no immune drugs. However following this pregnancy I again had a number of mc’s…and George suggested to get in touch with Professor Quenby, who now happens to work in Birmingham at the Heartlands Hospital, where I live...I can see from your post that you have seen her in the past, too..but I assume that was when she was still in Liverpool running her trial?
If you'd like more details about the recurrent miscarriage clinic she now runs in Birmingham, I am more than happy to dig them out for you...
Prof. Quenby was very honest with me from the start and felt that my chances after 7 miscarriages and at the age of 42/43 were pretty slim. However she agreed to prescribe prednisolone, aspirin and progesterone, should I fall pregnant again...And that’s exactly what she did. I literally called her on the day I found out and she had the prescription ready for me in the afternoon….She also looked after me for the first few weeks and did a number of early scans, which was a great reassurance….
Other than that I am not sure how you would be able to get the prednisolone prescribed, unless your GP is supportive and would do it for you….?
Even though I was never officially diagnosed with any immune issues and didn’t have the uterine NK cell test done, Prof. Quenby was happy for me to take the steroids…Looking back I am convinced this is what made all the difference to save our baby, who is now sitting next to me with a piece of toast in her hand and the biggest smile! Although we will of course never know for sure…
Over the years a lot of people told me to move on with my life, including Prof Quenby…As much as I wanted to get some normality back, I found it really difficult to give up wanting another baby and a sibling for Yannis….Now of course, I am glad we didn’t give up, although there would have been a time when we just would have had to, as it wouldn’t have been fair on our little boy.
I really hope your story will have a happy ending, too…of course it is already a happy story looking at your beautiful daughter Sophia…You must be very proud!
Oh, and something else..I did quite a bit of research when we were debating to cycle again with OE or DE….and it became clearer that if you are trying with your OE the less manipulation is actually better as the more mature eggs don’t like being poked about so much….I was told I might actually have a better chance with soft IVF or even a natural conception since I had fallen pregnant naturally a few times before. …Of course it gets harder to conceive when you are a little older …but it is not impossible. I was 43 when I had Kaya…so you’ve still got a couple of years to catch me
Wishing you all the best and lots of love
Let me know if I can be of any help at all, i.e sorting out contact details for Prof. Quenby’s clinic or anything else
Sophia xxxx |
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| Briony |
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| Joined: 06 Apr 2001 |
| Posts: 8277 |
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Posted: Thu Mar 08, 2012 9:18 am |
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Just running out the door, but have you heard of Mr Shehata in London Shelley? Might be worth a look-up.
Bx |
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| Maple |
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| Joined: 15 Nov 2008 |
| Posts: 7795 |
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Posted: Thu Mar 08, 2012 9:29 am |
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Shelly,
George might prescribe the Prednisolone after a consultation (and perhaps without further immune tests) now he is with Zita West i.e. not tied to Care and their crappy policies.
Mr Shehata might too after a consultation (and perhaps without doing his set of semi-immune tests) ... but if I have a choice, I would go to George ... as Dr Shehata is quite ÂŁÂŁÂŁ orientated (naturally, ladies don't mind if he can help prevent m/c's).
Personally, I think Siobhan Quenby will be likely to the best route to get the Prenisolone prescribed. If she won't, try to get your GP to prescribe it (show her/him articles about how prednisolone can prevent m/c's which you can easily find on the internet, and beg if you have to!), will be the easiest and cheapest way to go, if you want to use Prenisolone emprically.
Good Luck!
Maple
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Last edited by Maple on Thu Mar 08, 2012 9:45 am; edited 1 time in total |
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| maryrose |
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| Joined: 04 Apr 2006 |
| Posts: 8403 |
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Posted: Thu Mar 08, 2012 9:45 am |
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Hi Soph.
I've texted ClaireG who has Shelly's no. to let her know you have replied to her. You are a star [and Maple and Briony too] to make the time.
Love Maryrose xxx |
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| Brandy |
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| Joined: 16 Jun 2009 |
| Posts: 1270 |
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Posted: Thu Mar 08, 2012 9:52 am |
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Hi Shelley,
I have just seen this post and just wanted to add my 2 pence worth, I saw Dr.Paul Armstrong at the Portland Hospital in London for ÂŁ200, then he prescribed all my Immune Drugs and supported 2 of my cycles abroad.
Just another option.
Good luck in your journey.
Nicole xx |
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| Maple |
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| Joined: 15 Nov 2008 |
| Posts: 7795 |
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Posted: Thu Mar 08, 2012 10:29 am |
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| ShellyM |
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| Joined: 19 Aug 2004 |
| Posts: 1712 |
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Posted: Thu Mar 08, 2012 4:08 pm |
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Thank you all so much for replying Sophia, Briony, Maple, Maryrose and Brandy!
Sophia, Yannis and Kaya are just beautiful. Everyone tells me to give up and get on with my life but i just want to throw everything at the pregnancy if it happens again
Maryrose via ClaireG - thank for your text messages.
I am awaiting a letter from Prof Quenby, so I hope she see's kindly and prescribes them to me. If not I have seen Paul Armstrong in the past but again this was 2006. I will contact him if Prof Quenby is a no go and then go to George as a last resort.
Have to go now as a little girl is saying that Pooh Bear and her want to play busses!
xxxx
It's so hard as I know us ladies have a lot (sometimes too much) information but I just wish dr's would listen to us sometimes. One gp i've seen is a no go so i'm not holding up |
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6 x BFN
08 DE Spain - BFP!
Jun10 Nat miracle, Noah born asleep at 15 wks
Dec11 Nat Mir mc 6wks
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| Briony |
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| Joined: 06 Apr 2001 |
| Posts: 8277 |
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Posted: Thu Mar 08, 2012 5:48 pm |
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That sounds like a plan Shelly. Wish the GP would just listen though, sigh. Good luck with getting appropriate support.
Love Briony |
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| ShellyM |
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| Joined: 19 Aug 2004 |
| Posts: 1712 |
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Posted: Fri Apr 27, 2012 3:17 pm |
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After various desperate emails I have last got prednisone prescribed. Phew.
Thank you for all your messages
Love
Shelly xx |
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_________________
6 x BFN
08 DE Spain - BFP!
Jun10 Nat miracle, Noah born asleep at 15 wks
Dec11 Nat Mir mc 6wks
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Posted: Fri Apr 27, 2012 3:27 pm |
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Hi Shelly
That's brilliant news! xx well done for not giving up...and fingers crossed you'll get to use it soon!
Love
Sophia xx |
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| ShellyM |
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| Joined: 19 Aug 2004 |
| Posts: 1712 |
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Posted: Fri Apr 27, 2012 6:00 pm |
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| Thank you Sophia, Prof Quenby wanted to go for another biopsy but took letter to gp and eventually they agreed to write the prescription xxx |
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_________________
6 x BFN
08 DE Spain - BFP!
Jun10 Nat miracle, Noah born asleep at 15 wks
Dec11 Nat Mir mc 6wks
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