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| vip |
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| Joined: 16 May 2007 |
| Posts: 3414 |
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 Posted: Sun Mar 11, 2012 7:22 pm |
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Sorry to gatecrash ladies,
Meadsylou - I don't know what to say except I am so sorry to read your post about your baby's condition, big hugs to you  . I have been wondering about you as you hadn't posted. Seding you lots of hugs and strength and hope that your baby will be ok after surgery if that's what the tests confirm in London.
All my love xx |
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| wendymw |
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| Joined: 01 Feb 2008 |
| Posts: 5865 |
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Posted: Sun Mar 11, 2012 7:34 pm |
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Lou, we have FB'd and I don't know that I was much help to be honest. I think it's a tough one to know what to say to people, perhaps the best bet is to be vague at the moment (unless people know you were going for the scan of course) and wait until you've had the follow up scan to see if they can be more definitive (as I said on FB baby will be bigger then, so I'm sure they'll be able to see more).
It does seem like they've got a few suggestions of how they can manage it, but that won't stop you worrying yourself silly about it. I really wish there was something I could do after all you've been through to get here. In a way having the nuchal scan may have been a good thing, as I always think forewarned is forearmed and it may be that they can do something to help your baby before it's born.
Big hugs and as the others have said, if you want to talk you know where I am.
Just a thought, have you considered putting a post on the BB&B forum to see if anyone has any similar experiences or advice? You may not be ready to go that 'public' about it, but I'm sure you'd get some fab advice.
Wendy xx |
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| sooty1 |
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| Joined: 09 Apr 2008 |
| Posts: 931 |
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Posted: Sun Mar 11, 2012 8:42 pm |
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God Lou after all you have been through to get this baby (((((HUGS)))) Not sure I can offer any advice really but am always here or on FB if you want to chat.
If you are not upto talking about it don't although sometimes just to say scan raised some concerns but more tests are required will usually stop any further questions.
Really hope they can give you some positives at the hospital, thinking of you both hun xxxx |
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DD Olivia Beth born Feb 14 2010
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Posted: Sun Mar 11, 2012 9:47 pm |
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| Lou we have text but just to say I'm thinking of u and hubby and as I said I'm only at the end of the phone xx |
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May 07 - ICSI BFN
Apr 08 - FET - BFN
Sept ICSI - BFP -twins
Francesca and Simone born at 37 weeks on 24.06.09 |
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Posted: Wed Mar 14, 2012 11:55 pm |
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Sorry to gatecrash
Lou
I'm so sorry to read the news, just wanted to send you and DH bighugs. As a few others have said forewarned is forearmed, I really hope they can give you some answers in London.
Love to you
Julia |
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TTC 8 yrs
4 x ICSI Sep 08 - Mar 10 All BFN
IUI DS Mar 11 BFN
DS IVF Sep 11 0 Fert
DS ICSI Mar 12 BFP - BFN
Embryo Adoption Brno Feb 13 BFP!
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| tcr |
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| Joined: 15 Aug 2008 |
| Posts: 1504 |
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Posted: Fri Mar 16, 2012 10:44 am |
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hi ladies
lou, just wondered how you were coping ? is it next weekend you go to london? been thinking of you x |
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Posted: Mon Mar 19, 2012 1:38 pm |
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Hi ladies
Hope your ok Lou . Thinking of you and dh xx
Love Julie xx |
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| tcr |
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| Joined: 15 Aug 2008 |
| Posts: 1504 |
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Posted: Sat Mar 24, 2012 1:38 pm |
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hi everyone
lou just wanted you to know i have been thinking of you and dh today. hope you get some more positive news x x |
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Posted: Sat Mar 24, 2012 2:13 pm |
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| Lou thinking of you both xx |
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Posted: Sun Mar 25, 2012 4:38 pm |
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Hey all thanks for you kind words.
Baby is as feared at the worst end of the spectrum and currently only has a 10% chance of survival at birth. They are going to operate at 26 weeks and insert a balloon in her throat that should force the hernia away from her lungs a little and help them to grow, raising her chances to 40/50%. We are still really struggling to deal with this bombshell. I'm ill and everything I do is a real chore, keep trying to pull myself together for babies sake, but it is so so hard. We are having a precious little girl. I always knew in my heart one day I would end up with a baby girl, but for how long we will have her no-one knows xx |
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ICSI March 09 BFN, FET - June 09 Cancelled,
FET - Oct 09 BFN, ICSI - March 10 BFN
Array Notts - Baby Amelia miss you baby girl xxx
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Posted: Sun Mar 25, 2012 7:01 pm |
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Oh Louise
Firstly some hugs for you and Dh
I know that no words can take away the feeling of fear and despair you must have right know. To have such news is truly heartbreaking but you have hope. I know you are giving your little girl the best chance she can possibly have. You must hold on to how much better the odds are after the procedure. Of course you are feeling ill and struggling right know, who wouldnt be. You have to stay strong though and look after yourself to help her . She is a very precious little girl who has the best mummy and daddy to fight for her. Hold onto the fact that her chances increase quite a bit after the op.
I know it must be hard right know to see a future where everything is ok but I'm praying thats whats there for you and your little girl. You know where I am if you need anything, anytime
Love Julie xx |
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| wendymw |
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| Joined: 01 Feb 2008 |
| Posts: 5865 |
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Posted: Sun Mar 25, 2012 8:04 pm |
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Lou, I really don't know what to say to you my love, it's just the worst news. At least they have a plan of what they can do which should help your baby girl out. I can only imagine how hard this must be for you, but Julie is right, hard as it is, you must try to keep yourself as healthy as possible. I'm conscious that anything I say may sound trite, but i really hope that you can focus on the positive steps that you can take and whilst it's only 10% at the moment, that's more than nothing...
Have you thought about asking for any details of support groups for other people whose babies have had this? It may help you to speak to other parents who have had this, or to consider getting some counselling, as I'm sure talking about it may help.
It is no consolation, but I do think forewarned is forearmed and for me I would prefer to know sooner rather than later.
Big hugs and as Julie also said, if you want to talk or scream or just vent, you know where I am as well.
My love to you and your DH
Wendy xxx |
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Posted: Mon Mar 26, 2012 10:41 pm |
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| As always my thoughts are with you and your DH, yoiu know I'm only on the end of the phone anytime for you! Stay as strong as u can, u have a lot of people right by your side xxx |
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May 07 - ICSI BFN
Apr 08 - FET - BFN
Sept ICSI - BFP -twins
Francesca and Simone born at 37 weeks on 24.06.09 |
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| keeley |
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| Joined: 12 Apr 2008 |
| Posts: 769 |
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Posted: Sat Apr 07, 2012 9:58 pm |
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| Aww lou really sorry to hear truly feel for you & dh my thoughts & prays are with you 3 xxxx <3 |
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| KatieH |
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| Joined: 27 Mar 2008 |
| Posts: 711 |
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Posted: Tue Apr 10, 2012 9:01 pm |
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Meadsylou - so sorry to read this news. Youve had it so rough and now this on top.
I wonder if as she grows then the hernia might seem smaller or stop growing. Im sure the doctors know what they are doing and it sounds like they will give her every chance possible for developing a good pair of lungs. When is your next scan hon?
Hope your feeling better too x |
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Baby Thomas born 22/10/12 |
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Posted: Tue Apr 17, 2012 5:27 pm |
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Hi Lou
just wondering how you are ? Thinking of you,dh and baby xxx
Love Julie xx |
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Posted: Sat Jun 02, 2012 8:11 pm |
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Hi Lou,
Just wondering if you are ok, hope you and your little one are doing fine after the operation.
Best wishes,
Thinking of you
xxCarine |
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Posted: Wed Aug 01, 2012 9:59 am |
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| Just thought Id say hi. Finding things tough without our girl xx |
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_________________
ICSI March 09 BFN, FET - June 09 Cancelled,
FET - Oct 09 BFN, ICSI - March 10 BFN
Array Notts - Baby Amelia miss you baby girl xxx
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Posted: Thu Aug 02, 2012 10:31 pm |
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Hi Lou, if you are reading, just want to say been thinking about you and dh. Sending you big hugs xxxx
Ss x |
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TTC 9+ years - AKA Miss Daisy!
2009 Bfn, 2010 bfp - bio chemical pregnancy/early miscarriage
2011 3rd attempt (Short Protocol) and first immune cycle - poor response, 4 eggs. Only 1 mature, zero fertilisation
End of the IVF journey? |
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Posted: Thu Aug 02, 2012 10:58 pm |
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| Hey there SS. Hows you? xx |
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_________________
ICSI March 09 BFN, FET - June 09 Cancelled,
FET - Oct 09 BFN, ICSI - March 10 BFN
Array Notts - Baby Amelia miss you baby girl xxx
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Posted: Sat Aug 04, 2012 8:22 pm |
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| I'm ok thanks - busy with work at minute. Got a few breaks planned over next few months to chill out and relax. Just watching the Olympics. Hope you are taking care of yourself ?? Xxxx |
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TTC 9+ years - AKA Miss Daisy!
2009 Bfn, 2010 bfp - bio chemical pregnancy/early miscarriage
2011 3rd attempt (Short Protocol) and first immune cycle - poor response, 4 eggs. Only 1 mature, zero fertilisation
End of the IVF journey? |
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Posted: Mon Nov 05, 2012 7:56 pm |
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Hi ladies
It's a year to the day we started our ivf cycle that resulted in precious baby Amelia. I felt I wanted to mark the date in some way so thought I would post on here. Hope all is well for you all x |
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_________________
ICSI March 09 BFN, FET - June 09 Cancelled,
FET - Oct 09 BFN, ICSI - March 10 BFN
Array Notts - Baby Amelia miss you baby girl xxx
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| tcr |
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| Joined: 15 Aug 2008 |
| Posts: 1504 |
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Posted: Sat Nov 10, 2012 9:17 pm |
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hi lou
i hardly ever come on the boards nowadays, so glad i have, sorry its a little late to mark the occasion. i think about you and some other doncaster girls i meet up with , we always ask if either have heard from you and how you must be feeling. do you get any kind of counselling to help you cope with the loss of Amelia? does she have a place where you can go to visit her? it doesnt seem right talking about plots, she should be in your arms, im filling up now, so very sad.
i see you have decided to leave facebook for a while. if it helps to talk on here, i promise i will check for your posts alot more often. thinking of you lots lou x x x |
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| wendymw |
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| Joined: 01 Feb 2008 |
| Posts: 5865 |
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Posted: Sat Nov 10, 2012 10:12 pm |
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Lou, sending you my love. You and your DH are often in my thoughts.
As Tracy said, if you ever need anything you know we are here. My email address is on my profile if you wanted to email, but understand if you're taking a break from virtual life with having a break from FB.
Lots of love
Wendy |
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Posted: Thu Jan 17, 2013 9:32 pm |
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Hiya
How is everyone?
Things have been busy for us, am busy sorting Amelia's charity night out in aid of CDH Uk for Amelia's first birthday.
In other interesting news, received a phone call on Friday saying the PCT want to fund us another PGD cycle, talk about shocked! Scared, anxious, apprehensive etc etc. Got an app at Notts on Monday, OMG could we really be crazy enough to consider cycling again??.... xx |
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ICSI March 09 BFN, FET - June 09 Cancelled,
FET - Oct 09 BFN, ICSI - March 10 BFN
Array Notts - Baby Amelia miss you baby girl xxx
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