| Robbo2 |
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| Joined: 14 Mar 2007 |
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 Posted: Fri Sep 07, 2012 10:13 pm |
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Hiya Maryrose
Not heard anything from you for a while and just wondered if Olly got his school sorted and if so how has he gone in his first week?
Robbo xx |
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| maryrose |
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| Joined: 04 Apr 2006 |
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Posted: Fri Sep 07, 2012 11:19 pm |
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Hi Robbo,
Thanks for asking.
MASSIVE SAGA!!! It has gone on forever and taken all the time I have, when I am not looking after my boy [who needs more supervision to stay safe, than the norm] or working.
In a nutshell - Olly HAS got high function autism, he now has a statement of SEN and he WILL be going to our 1st choice school.
However, statement granted 2.5wks ago and not yet typed up despite extensive nagging! 
The reality is that we have to wait, yet again, for the school to receive the statement so they can start to find someone to work with him in the classroom.
And he will be on a very careful integration, when he does start.
I am champing at the bit, because A) Olly is very ready for school, just like any little boy of his age, B) he is streets ahead of where big-boy was at this stage - a bright boy academically, C) he is resentful of the fact he hasn't gone with his peers.
It seems very wrong to me as it emphasises the difference instead of making it less, but there we are - I suppose we are at the last hurdle after a very difficult 12 mnths.
Hmm., I say 'we' but I mean me, or maybe 'me and Olly' as Dh has had no part in it at all. He has got the same condition as Olly and I have that to tackle now as well, as it is making life with him intolerable.
Its all a bit of a nightmare right now, but hoping things will get better soon. I HAVE to tackle Dh soon as it is becoming impossible to live with him.
Wish me luck Hope your little man has got on ok this week.
Lots love Maryrose xxx |
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| Robbo2 |
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| Joined: 14 Mar 2007 |
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Posted: Sun Sep 09, 2012 10:10 pm |
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Hi Maryrose
I so feel for you both. I can't believe that they are taking so long to do the statement! As you say they're supposed to be helping the esituation not making it worse!
I noticed over the last few weeks of nursery DS had definitely outgrown it! He too was ready for school acedmically - just a bit worried about mentally! He seemed to settle very well - which he always does the first few weeks or so - it's almost when he realises that it's going to be a longterm thing that he starts to look for things that he doesn't like/scare him/upset him for whatever reason. School was fine it's the play times he's havint a bit of difficulty with as the teachers from his class went out at break time with them on the first day then the 2nd day they had totally different teachers out with them that he had no idea who they were?*! They have 3 teachers/TA's in his class to 18 pupils - you would have thought that at least 1 of them could have been there on each day of the first few weeks so at least they had a familiar face and it gave them chance to get to know the other teachers!!! So has Olly not yet started? I can't believe knowing that they are going to get the statement that they won't let him in???? It's just ridiculous!
As for other halves - well what can I say?*! DP has been brill in that he always takes time to find out what's been happenning in DS's day and he rang him every day last week after he had come home to see how he had done. However as far as doing anything on looking for his school - forget it!! I'm not being flipant when I say this but I seriously think they are on a different planet - and that most men when you look at them could quite easily fit into a diagnosis of Aspergers!!!! DP is having major mood swings at the mo but I'm trying to overlook all of that after him losing his mum and the fact that his dad finally got around to burying the ashes last week - 9 months on - it was just too long after her passing and it's brought it all up again - I feel affected so DP must be in pieces again  ! Anyway that's done and put to rest so hopefully he can come to terms with things a little and start to heal.
DS went fine and he had his first family assemble (it's a CofE school) this Friday where he won a certificate - for his artwork and the detail he put into it - I was choked as it was me standing inder a rainbow with his goldfish  ! He is so funny cos whenever he's done anything to be proud of he has this swagger as he walks - and boy he had it in the bucket loads this Friday!!
Right best be off - trying to get some early nights as I;m shattered doing the school run - no wonder DS is zonked at bedtime - I am too!!
Let us know how you get on and when Olly finally gets into school!!
Big hugs to you too - as you say at the final hurdle - so keep running it will be over soon.
Robbo xx |
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| maryrose |
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| Joined: 04 Apr 2006 |
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Posted: Sun Sep 09, 2012 10:39 pm |
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Robbo - just off to bed after a somewhat challenging day with Master O. but have meeting with the SEN from the school tomorrow p.m., so might know a bit more then...
Last week, in consultation with the school via email, had slightly snooty email from the head, but OMG! something soooooooooooo funny happened that will always live on in our memories.
Remind me to tell you - as best I can without breach of confidentiality!
Love Maryrose xxx |
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| maryrose |
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| Joined: 04 Apr 2006 |
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Posted: Tue Sep 11, 2012 8:45 pm |
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Update for you, Robbo
Had meeting yesterday and phew! - they were drafting the ad., that day after I left, for 2 people to work with my boy.
STILL NO STATEMENT!!! For Goodness Sake! Its 3 weeks today since he had his panel. This is getting ridiculous.
Anyway, I was told he would be in before the end of this month, so I have finally started to sew name labels into Olly's uniform and let him try the whole caboodle on tonight.
So funny and sweet. He went totally hyper with delight and ran about like a crazy boy!
Looked gorgeous, but sooooo big and grown-up. My word! He is a big boy. Easily passes for 6-7yrs.
Re your 2nd paragraph - you aren't wrong!! That is why most people diagnosed with autism are male. Its no co-incidence.
Glad your little man has gone on well. Long may it continue.
Spk soon, love Maryrose xxx |
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| Robbo2 |
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| Joined: 14 Mar 2007 |
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Posted: Thu Sep 13, 2012 11:20 pm |
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Hiya
Sorry didn't manage to get on yesterday - I feel a bit manic - and kn@ckered if I'm honest - now that I'm on the school run!!! We don't normally rise until 8.30 - 9 if I'm not in work so these 7.30 starts are a bit of a nightmare*!?
Can't believe they are taking so long with it all - then again after how my works going (which is government funded!) I can believe anything!!!!
I know what you mean about looking gorgious but sooo grown up. As I said DS and another little boy got a certificate last week and no word of a lie DS is literally head and shoulders above him on the photo I have. My dad was with me and said are they the same age - he couldn't believe it!!!
What was it you were going to tell me by the way ????
When I have time I'll tell you a little story about a boy in DS's class with Autism and how some parent's just don't help their cause!!
I don't know if I've said but DS has been going great - except for playtimes - which has now extended to lunch times cos he's staying for lunch - in that they don't send any of their teaching staff out with them on certain days. DS has been quite upset about it - as have a few others apparently - but he set off this morning telling me he was going to be upset at lunch time - and we weren't even at school which meant it was 3 hours away FGS!!!! Although I had to laugh when we got there today there is a only 18 in DS's class and there must have been at least 5 or 6 balling their heads off and clinging to parents! I really don't think we realise what a big thing in our little one's life starting school is ! I feel totally lost without my play buddy.
Anyway - that means I now have time to do all the gardening and decorating that I just put to one side !
Best be off - trying to get in bed before midnight - ah ah !!!
Speak soon
Robbo xx |
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| maryrose |
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| Joined: 04 Apr 2006 |
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Posted: Fri Sep 14, 2012 10:03 pm |
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Hi Robbo,
Mmm, I must admit, I am glad he is going to have a gradual integration. It will be less harrowing for me!!! Ha ha ha-half serious joke. 
Sounds like your little man knows how to play you, from that comment. They are very clever.
I'd like to hear about the little boy with autism, please...
Knowing how to play it with other parents is quite difficult. More on this later.
I now have the draft copy of the statement. I have to amend a couple of things [they got his name wrong!!] and send it back. It's been quite a surprise to see how much of my contribution they have used [almost verbatim] in the summary.
Had another good chat with the school yesterday and they still say he should be with them, part time by end of the month. Hoping this is going to happen as he is being a proper pest at preschool, as he has outgrown the territory.
Back when I can. Love Maryrose xxx |
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| Robbo2 |
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| Joined: 14 Mar 2007 |
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Posted: Sun Sep 16, 2012 12:12 am |
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Hi
just to say will be back during the week as in Skegness at the mo.
robbo x |
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| Robbo2 |
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| Joined: 14 Mar 2007 |
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Posted: Sun Sep 16, 2012 8:57 pm |
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Hi
just to say will be back during the week as in Skegness at the mo.
robbo x |
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| maryrose |
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| Joined: 04 Apr 2006 |
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Posted: Sun Sep 16, 2012 9:06 pm |
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Hi Robbo.
Thanks for message. When are you back? You are the lucky one, being able to take holidays out of term time. Olly's new school has a blanket refusal approach
XX |
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| Robbo2 |
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| Joined: 14 Mar 2007 |
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Posted: Sun Sep 16, 2012 9:31 pm |
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Hi Maryrose
Sorry - we only go for weekend so not got DS out of school ! My mum and dad have a caravan there so we go a lot! Although DS's school is pretty good with it - especially in infants. They feel that travelling at this age is as educating as being in school thankfully although I know all schools are cracking down on it. What worries me is if they are ill and you have them out of school. I'm of the old school in that if you're not well enough you don't go but the kids turn up with snotty noses and the worst hacking coughs you can imagine ! DS seems to have a sniffle already and he's only been there 2 weeks - on a part time basis!
Just got in so will be back - probably on Tuesday and I'll tell you about the LO with autism!
Be back soon
Robbo x |
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| maryrose |
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| Joined: 04 Apr 2006 |
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Posted: Sun Sep 16, 2012 9:56 pm |
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Robbo - Olly caught a cold 1st week back at pre-school. I've now been to Boots and bought him a multi-vits with omega, even though he eats well. I think I will put him on the kiddies echinacea too, from Holland & Barratt. Can't stand the thought of another winter of bugs like last year. It was a nightmare.
On and I forgot to say - I'm with you on the early starts 
School starts at 8.50am, its 5.5 miles away AND Olly is to be 10 mins before the rest of the class arrive. OMG!
One good thing though - ample parking. The preschool site is an absolute nightmare for parking and their are examples of road rage every single day.
Look forward to tales of the unexpected...
Love Maryrose xxx |
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| Robbo2 |
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| Joined: 14 Mar 2007 |
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Posted: Tue Sep 18, 2012 10:42 pm |
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Hi Maryrose
How's things? Have you heard a start date for Olly yet?
It has been DS's first full day yesterday and today - and upto now he seems to be enjoying it - although I've probably jinxed that just by typing it!!!! We had a bit of a wobble about lunchtimes and the fact that he didn't know anyone but that seems to have calmed for the minute - no doubt it will be something else next week!*? He wanted to know when Mummy was coming for him on Thursday last week and I think he got a bit tearful but one of the TA's is absolutely brill and she asked him where the picture of us that he takes to school was and asked him to get it out so SHE could have a look! Seemed to do the trick.
I'm a bit concerned about him with his drinking as no-one seems to be keeping an eye on whether they are actually having one or not! DS has come home virtually every single day with the majority of his drinks bottles still full! I've had to put him back on the Movicol for a bit - don't want to be having episodes of leaking though now he's started school! Oh Hum - I'll be white by the time I'm 45 at this rate!*?
So the little one that has autism. It's nothing major it's just sometimes I don't think the parents help their cause IYKWIM!*? I was walking down to collect DS and this mum was with me and she was saying how difficult her DS was finding school and came out with the first statement of he doesn't even know which hand to hold his pen in!!**?? Well surely he has a favourite and if not just let him do it till YOU find out by watching him which his favourite is or get him to try both and TELL you which feels the most natural! Then she was on about when they are getting ready for school he was a nightmare cos all he wants to do is play on the phones. He'll pick one up until the battery has died and then the other - urgh!!! Why have them out at all when it's time for school??? And just cos he's autistic - does that mean they don't guide him and discipline him? MY DS would play all day long on ANYTHING with a screen - IF I LET HIM. When you listen to some of the parents you just wonder what chance their children have in life - regardless of any difficulties - and I don't mean to get on my soapbox here but it's true and so very sad. One of my work colleagues daughter is autistic and she is so different in her teaching/disciplining methods. She will agree that it is so very hard but she has to do it otherwise what kind of an adult would her daughter turn into??? They had gone on an outing with a local group a few weeks ago and they all had t-shirts on saying I DON'T SUFFER FROM AUTISM - I ENJOY EVERY MINUTE OF MY LIFE. Which I thought was a great message ! well best step down from my box - as DP would tell me !
Got to go and book some tickets for Peppa Pig world!!!
Take Care
Robbo xx |
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| Robbo2 |
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| Joined: 14 Mar 2007 |
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Posted: Mon Sep 24, 2012 9:47 pm |
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HI Maryrose
Didn't want to gatecrash Kitty's thread but just wanted to say good news to hear Olly will be starting school soon ! I didn't realise I was the last to write on the previous thread and said I would be back later - sorry  although I did know everything so we must have caught up on another thread???
DS isn't well ! Picked him up from school today and teacher said he kept saying he was really tired and that he'd had a lay down - although she said a lot of the kids were sleepy as last week was the first full week. Anyway got him home and he's got a high temp and says he feels sick and his throat hurts?*! Bizarre symptoms but I think it's all stemming from him not going to the loo!!! He didn't have a drink any of the days last week in school and this is his starting point for the constipation. I have spoken to the teachers 4 times!!! Today being the 5th and I am just sooooo mad that I've had to put him back on meds for the sake of them getting him to have a drink FCOL! Will be back with more tomorrow when DPs at work!
Robbo xx |
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| maryrose |
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| Joined: 04 Apr 2006 |
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Posted: Mon Sep 24, 2012 10:08 pm |
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Robbo - the last few months have been a long hard road, well and truly on my ownie with only the Lucky Ladies for support if I am truthful!
Elizabeth Hope has bobbed on to Over-40s to support me though, which was lovely of her.
Sorry to hear your young man is off-colour. Olly too has a sore throat this evening. The bug season is about to start.
Hmm, thanks though, as I too need to consider this when Olly starts. We are still having mild issues in this department.
XX |
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| Robbo2 |
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| Joined: 14 Mar 2007 |
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Posted: Tue Sep 25, 2012 11:40 pm |
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Hi Maryrose
Hope Olly is a little better. DS is very unsettled tonight but only got a small temp after being medicated - I can hear him mumbling to himself as I'm typing bless him!! I hate it when they are ill !
I'm sorry I didn't respond on our other thread - TBH I thought as you hadn't been posting on it you were just upto your ears with the assessments and paperwork to get Olly the support he needed that you hadn't had chance. Which was why I posted the additional thread asking how you were doing with it all.
So Olly is still having slight issues with the loo? DS did for a while after his first problem then it blew up all over again. He will no-doubt have more problems after these last few days as he hasn't eaten much and he's on the calpol and nurofen - which always bungs him up!
Well I've been asking DS how he's doing at school and all I keep getting is - not played with anyone at break times - only the big children and the teachers - so no doubt they will be having a word with me soon about his social skills - I can feel it coming ! He's been off today as was not at all well this morning and has slept the most of today on and off! He said as we were eating dinner "has today nearly gone?" we said yes why? he said "cos I haven't done anything today and I don't like not doing anything - so it means I have to go to school now" - this was 6pm! So on a good note it looks like it's keeping him well occupied and he loves the learning side of it - just got to get him having fun with the others!! Having said that we went to the fair on Saturday with friends who have a little boy in DS's class - and the little boy hardly spoke to any of us - only his mum and dad - the whole time we were out!*?
Right best be off as I need to catch up on some sleep seeing as I didn't go to bed till 1.30 am and then DS was up at 6.15 due to DP letting his alarm go on and on and on!!!!! I've told him he'll get up tomorrow morning as I'll be kicking him out of bed if he lets it continuously ring !
Speak soon.
Robbo x |
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